Skip to main content

Convincing Another Special Needs Mom My Son Has Autism

When Dominic was first diagnosed with Autism at 2 1/2 years old, I felt like I had tell EVERYONE. If he didn't talk when asked to, I would say, "oh, it's because he has autism." Fast forward to nine years later, the point we are at now. This past Sunday, I was at a wonderful event and I was meeting new people. I was chatting with two young women and I told both of them separately that Dominic had autism in the course of conversation.  Both of them had the same response back, "we thought so, but didn't want to ask." I told them basically they could ask me anything. I know that not all special needs parents are that way, but over these years, that is the parent I have evolved into. Anyways, recently I had a discussion with another special needs mom, though I'm not quite sure that I would call it that. It was more like I was in a courtroom and I was having to defend myself. Let me explain. I had a special needs mom tell me something a long, long time ago that has stuck with me and probably always will. This mom was one of the nicest, sweetest women in the world that has since moved away. Her son has both Down Syndrome and autism. One of the times we chatted, she said, "you have it much harder than me, people take one look at my son and know," "when people look at Dominic they can't tell." The worst things my family and I get from other people aren't comments, but "dirty looks," because they think he is misbehaving. I used to be so ultra sensitive about it, but not anymore. I just smile and move on. Okay, back to the mom I was talking to recently. This particular gal (who has a son with autism) is what I would call an acquaintance. We chit-chatted for a minute or two and then she proceeded to challenge me as to whether Dominic has autism. She kept hammering away at me and then I finally said, "yeah, he talks to himself and has other autistic traits." She eventually backed down, once I said that. Yikes, I have never had to convince another mom of something like that. Wouldn't it be great if diagnosing autism was like when you take a home pregnancy test? One line for no and two lines for yes?? Unfortunately, that is not the way it works. Diagnosis is based on a set of criteria. According to the website, mayoclinic.org:

"Autism spectrum disorder is a serious neurodevelopmental disorder that impairs a child's ability to communicate and interact with others. It also includes restricted repetitive behaviors, interests and activities. These issues cause significant impairment in social, occupational and other areas of functioning." "The term "spectrum" in autism spectrum disorder refers to the wide range of symptoms and severity."

Once someone knows that Dominic has autism, the next question usually is, "so, where does he fall on the spectrum?"  I try very hard not to judge other parents (whether their child has special needs or not), because I wouldn't want someone to judge me. Wow, talking to that mom earlier in the week, I immediately felt on the defensive. I didn't get upset, I think mainly because I was so taken aback by her boldness. If anything, I think my reaction was more of shock. I really wish I would have been better equipped to handle her.




Comments

  1. You never have to defend your actions regarding YOUR son. You have the best information available and constantly seek the best for him and follow through on getting the best for him. Love, Auntie

    ReplyDelete

Post a Comment

Popular posts from this blog

A Book Every Autism Mom Should Read

When Dominic was diagnosed with Autism at 2 1/2, I went to our local library and took out every book I could find about Autism. Sometimes I would bring back 20 books. This was 2006, so a lot of the information was very "dated." I guess I was looking for a book that would tell me what I should do next, like a "manual." Autism doesn't quite work that way! The saying is, " if you know one person with Autism, you know one person with Autism." Every mom to an individual with Autism follows their own "path." I think as moms, we judge ourselves much harder than anyone else does. I was 41 when I had Dominic. Did he get the diagnosis of Autism because I was an older mom? because I drank a lot of pop? I could sit and think about that every minute of every day. I am pretty integrated into the Autism community around Lansing and have told more than one person that it took me about two weeks to come to terms with Dominic's diagnosis. It is so incredib...

Mainstreaming and Inclusion

The hubby and I were discussing the other day how special education students were treated back when he and I were in school.  He remarked to me that in his time, they were "hidden away" from the rest of the students.  When I was in elementary school, I can remember seeing the kids in those classrooms pass by us in the hallway.  I don't ever recall seeing them in the lunchroom or playground.  I'm so glad that times have changed.  Even though Dominic is in a "self-contained" special education classroom, he does get to go to the art, gym and music classrooms.  He also gets to eat lunch in the school cafeteria.  He loves hot lunch on Thursday - pizza!! Given Dominic's abilities, he is able to be "mainstreamed" into the general education classroom for small amounts of time.  Every moment he is able to do that gives me so much hope for his future.  I absolutely love what Dominic's current teacher is doing.  He has started a peer-to-peer progra...

It's a "Group" Effort

Since going to the local barbershop is still not allowed where we live, it fell upon us to figure out the best way to shave Dominic's beard and mustache. Typically, Dominic goes to our local barbershop to get his haircut and his barber (Vince) also takes about 30 seconds to shave the beard and mustache. This August, it will be five years that Dominic has been going to Vince. That in itself is a huge milestone as anyone with a child/adult with sensory sensitivities knows. Anyways, earlier in the week my hubby, Lauren and I had all noticed that Dominic's facial hair definitely needed some assistance. I mentioned to Lauren that I needed to find a "social story" about getting a shave. Before I had a chance to find one, she took it upon herself to find one and print it out, it had both an electric shaver and shaving cream/razor stories! That meant so much to me, because she didn't have to do that, she wanted to!    I showed the social story to Dominic and sai...