Skip to main content

A Book Every Autism Mom Should Read

When Dominic was diagnosed with Autism at 2 1/2, I went to our local library and took out every book I could find about Autism. Sometimes I would bring back 20 books. This was 2006, so a lot of the information was very "dated." I guess I was looking for a book that would tell me what I should do next, like a "manual." Autism doesn't quite work that way! The saying is, "if you know one person with Autism, you know one person with Autism." Every mom to an individual with Autism follows their own "path." I think as moms, we judge ourselves much harder than anyone else does. I was 41 when I had Dominic. Did he get the diagnosis of Autism because I was an older mom? because I drank a lot of pop? I could sit and think about that every minute of every day. I am pretty integrated into the Autism community around Lansing and have told more than one person that it took me about two weeks to come to terms with Dominic's diagnosis. It is so incredibly important to accept the diagnosis or else you can't move forward. I have been told that is pretty quick. Every person is different. I am blessed that I have friends who have children with Autism that are older than Dominic. I have been able to ask questions about potty training, puberty, wearing deodorant, etc.  I have been on the Board of the Mid-Michigan Autism Association for almost 10 years. My favorite parents/caregivers to talk to are the ones who have a child that was just diagnosed. It's what I really wish I had in 2006. Someone just to tell me it would be okay. When you put the word Autism into a search engine, it brings up millions of entries. You truly don't know where to start. The Mid-Michigan Autism Association wasn't founded until 2008, so I couldn't reach out to them yet. I recently heard about a brand-new book written by three Autism moms. It's called, "Autism Out Loud: Life with a Child on the Spectrum, from Diagnosis to Young Adulthood." I put a hold on it at our local library, and I picked it up this past Wednesday night. I finished reading it this morning. Wow. It was written by three Autism moms who all have children with Autism and are different ages (Kate Swenson, Carrie Cariello and Adrian Wood). The mom with the oldest child has a son close in age to Dominic. The past two days, I kept telling Larry that so much of the book resonated with me. So many of the things they talked about, I could 100% relate to. It really is a book every mom should read, whether you just got the diagnosis of Autism for your children or you are a more "seasoned" mom like me! These days, I never pass up an opportunity to talk about Autism! Dominic, another Board member from the Mid-Michigan Autism Association and myself had an opportunity to talk about our organization!! We were on a local television station and did a "live" interview. That is something I could have NEVER imagined when Dominic was first diagnosed!



Comments

Popular posts from this blog

Those "Steps" to Independence Can Be Hard

We are heading towards 600 orders for Dominic's business. Since our long-term goal for Baked Goods By Dominic is having a "brick-and-mortar" and hire those with disabilities, it is essential and imperative that I continue to teach him all parts of the business. Since I prompted Dominic for so many years for speech, he has become "prompt dependent." What that essentially means is that he will look at me for a prompt, like, "what do you do next?" I do that one a lot. Dominic has been going to a private speech therapist for over ten years and she reminds me often that Dominic usually will know the answer, if I am patient and wait for him. That has been a very hard habit to break! Dominic has an incredible memory, so I put it to the test this morning. I didn't write out the steps, I wanted to see how much he could do completely on his own. We have a customer picking up his order today, but the only thing that had been done is putting the cookies into t...

Why We Pursued Guardianship of our Son with Autism

Last Thursday morning, my husband, Dominic and I went to our county's Probate Court and had Dominic's Guardianship Hearing. My husband and I are Co-Guardians, and we were granted "Partial Guardianship," which means Dominic can make some of his own decisions (future educational and vocational placement options, what to wear and how he wants to spend his free time), but my husband and I will make his medical, health care, legal, contractual and major financial decisions. The subject of Guardianship in the disability "world" has been and continues to be a controversial and divisive topic.  I was a panelist for an Autism Conference this past summer and presented on what it's like to have a child with Autism. Towards the end of my presentation, I mentioned that Dominic had just turned 18 and that we were going through the Guardianship process. When the attendees could ask questions, the first person that went up to the microphone started telling me that I was...

Presume Competence

Since we have traveled outside of the United States since Dominic was very small, we have had to get him a Children's Passport every five years. Since his current one expires in February of 2024 and he is now 19, we had to apply for an Adult Passport. I don't know why my husband and I picked Dominic's first day of school and Michigan State University moving in their students, but the appointment was yesterady at 3 p.m. We had gathered all of the documents needed and then went into a special room in the East Lansing Post Office just for Passports. The three of us sat down and the clerk asked Dominic his age. He said, "19." Since we were also getting his picture taken for the Passport, he went into a separate room, where she took a picture of him and then let him look at it to make sure he liked it (it will be his picture for the next 10 years)!  He said he did, so he sat back down with us. The clerk filled out a bit more of the paperwork and then she let Dominic s...