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Finding the Right "Reward"

During the 2023-2024 school year, I would ask Dominic if he would like to read a book from time-to-time. The answer was always a "no." I didn't want to put any pressure on him, since he got on the bus about 7:20 a.m. and didn't get home from school until close to 3 p.m. He also had art therapy, speech therapy and music therapy! This summer, I tried a different approach. The Capital Area District Library System has a summer reading program. You could log in reading times online, but with Dominic being such a "visual" learner, I opted to print out the sheet. We also worked with his private speech therapist to have him ask me, "Mommy, can we read a book?" He would have to do that first, me not ask him.  The sheet from the library had two sets of circles that you could check off or put an "x" on. Each one had 30 circles, for a total of 60 circles. Each "circle" represents 20 minutes of reading. When he reached 30 circles, I told him
Recent posts

Those "Steps" to Independence Can Be Hard

We are heading towards 600 orders for Dominic's business. Since our long-term goal for Baked Goods By Dominic is having a "brick-and-mortar" and hire those with disabilities, it is essential and imperative that I continue to teach him all parts of the business. Since I prompted Dominic for so many years for speech, he has become "prompt dependent." What that essentially means is that he will look at me for a prompt, like, "what do you do next?" I do that one a lot. Dominic has been going to a private speech therapist for over ten years and she reminds me often that Dominic usually will know the answer, if I am patient and wait for him. That has been a very hard habit to break! Dominic has an incredible memory, so I put it to the test this morning. I didn't write out the steps, I wanted to see how much he could do completely on his own. We have a customer picking up his order today, but the only thing that had been done is putting the cookies into t

Presume Competence

Since we have traveled outside of the United States since Dominic was very small, we have had to get him a Children's Passport every five years. Since his current one expires in February of 2024 and he is now 19, we had to apply for an Adult Passport. I don't know why my husband and I picked Dominic's first day of school and Michigan State University moving in their students, but the appointment was yesterady at 3 p.m. We had gathered all of the documents needed and then went into a special room in the East Lansing Post Office just for Passports. The three of us sat down and the clerk asked Dominic his age. He said, "19." Since we were also getting his picture taken for the Passport, he went into a separate room, where she took a picture of him and then let him look at it to make sure he liked it (it will be his picture for the next 10 years)!  He said he did, so he sat back down with us. The clerk filled out a bit more of the paperwork and then she let Dominic s

Why We Pursued Guardianship of our Son with Autism

Last Thursday morning, my husband, Dominic and I went to our county's Probate Court and had Dominic's Guardianship Hearing. My husband and I are Co-Guardians, and we were granted "Partial Guardianship," which means Dominic can make some of his own decisions (future educational and vocational placement options, what to wear and how he wants to spend his free time), but my husband and I will make his medical, health care, legal, contractual and major financial decisions. The subject of Guardianship in the disability "world" has been and continues to be a controversial and divisive topic.  I was a panelist for an Autism Conference this past summer and presented on what it's like to have a child with Autism. Towards the end of my presentation, I mentioned that Dominic had just turned 18 and that we were going through the Guardianship process. When the attendees could ask questions, the first person that went up to the microphone started telling me that I was

An Important Anniversary

  When Dominic was first diagnosed with Autism at 2 1/2, I truly had no idea what would happen when he turned 18 (which is now just 8 short months away) . Would he go to college? would he live in a residential facility? would he have a job? It is so hard to predict the future for any of your children, but especially for those with higher support needs. Today, marks the one-year Anniversary of Dominic's baking business, " Baked Goods By Dominic ." I have spent the past few days thinking about that. I read recently that just 32% of adults with Autism have paying jobs. That means there are 68% that are not employed. That is a HUGE number. I have told more than one person since Dominic's business started, it's not like someone was going to knock on our front door when Dominic turns 18 and say, "hey, I'm here to offer Dominic a job!"  We had to create an opportunity for him.  Living in Michigan, he can be in the school district until he is 26. We had

Focus on the Positive

Dominic starts his senior year of high school this coming Tuesday. Living near a large university, we have received a handful of brochures and letters in the mail addressed to Dominic asking him to consider going to their college. I came to terms with the diagnosis of  his Autism Spectrum Disorder (ASD), a long time ago (like two weeks after the diagnosis) , but I have to admit a small part of me was sad.  If Dominic was a "typical" incoming senior, we would be making an appointment with a professional photographer for senior pictures, visiting possible colleges for him to go to and he would probably be driving a car to school everyday.  Instead, I decided that I wanted Lauren to take his senior pictures, we will not be visiting colleges and he won't be driving himself to school everyday.  When Dominic was first diagnosed with ASD, I truly had no idea what to expect. I have said it before and I'll say it again, my only frame of reference of ASD was the movie, "Ra

It's Time to Leave the "Protective Bubble"

This Friday is Dominic's last day of 11th grade. He did part of 10th grade and all of 11th grade "virtually." While "virtual learning" has been good in some ways, there definitely has been one huge disadvantage. He has had seven seizures since March of 2020. All of Dominic's seizures, except the very first one, have been caused by anxiety/stress/change of routine. Each time he has had a seizure, I have had to call his Pediatric Neurologist and we discuss his medications. At Dominic's most recent in-person appointment, the Pediatric Neurologist basically said Dominic was at the top limits on his two current anti-seizure medications and she was very concerned about adding a third, especially since he was continuing to have seizures.  After some discussion, since Dominic also has Generalized Anxiety Disorder , we decided to treat the anxiety with a low dose of the generic version of Zoloft . Thank goodness he hasn't had any side effects and he has had