bountifulplate

This Friday is Dominic's last day of 11th grade. He did part of 10th grade and all of 11th grade "virtually." While "virtual learning" has been good in some ways, there definitely has been one huge disadvantage. He has had seven seizures since March of 2020. All of Dominic's seizures, except the very first one, have been caused by anxiety/stress/change of routine. Each time he has had a seizure, I have had to call his Pediatric Neurologist and we discuss his medications. At Dominic's most recent in-person appointment, the Pediatric Neurologist basically said Dominic was at the top limits on his two current anti-seizure medications and she was very concerned about adding a third, especially since he was continuing to have seizures.  After some discussion, since Dominic also has Generalized Anxiety Disorder , we decided to treat the anxiety with a low dose of the generic version of Zoloft . Thank goodness he hasn't had any side effects and he has had ...

As we continue through navigating our new "normal," one thing in particular has stood out to me as far as parenting Dominic goes. No one can make it alone through this. I'm sure you have heard the saying, "it takes a village to raise a child."   Never has that been more true than doing these unusual times we are currently living in. After I had Lauren, I had two miscarriages. When I got pregnant with Dominic, I was worried every single day that I would have another miscarriage. I think I knew deep down from the time he was born that something wasn't quite right. When he was diagnosed with Autism at age 2 1/2, it surprised me, but not really. As the diagnoses started stacking up, ADHD and Generalized Anxiety Disorder at age 3 and then Complex Partial Epilepsy five years ago, I knew that we needed additional support. Say what you will about Facebook (I know not everyone likes it), but for those parenting children and adults with disabilities (such as our fami...

When I first started writing this blog back in 2011, it was because it had been a traumatic year and I felt that I needed a way to get my emotions out. One of my first posts was about my mother-in-law who had passed away in January. 2011 ended with me getting diagnosed with Congestive Heart Failure and spending the night in the hospital. As I started sharing my different experiences such as watching my daughter go off to college, little by little, the stress I had been holding in, seemed to dissipate. I could write about my aging parents, Dominic's different disabilities, and what it's like to be a stepmom. I have been told that my blog is kind of like the way I talk.  I am grateful and humbled when someone takes the time and reads a post. Yeah, I could sit out in front of my house in a lawn chair and tell my story to the people driving by, but writing a blog post and putting it out into the Internet reaches a lot more people. I had one of my blog posts on Yahoo less than ...

When Dominic started seventh grade back in August, one of the electives he picked was Choir. I liked that he wanted to do Choir, because it meant that he would be with many of the same kids he has been with for the past couple of years. At the concerts, about 75% of the time he doesn’t sing, but stands there. He always gets assistance from one of the guys or gals to help him know where to stand and when to follow the choir when they go on and off the stage. No one seems to care that he isn’t singing, I’m just happy that he can stand there for long amounts of time and not fidget too much. That in itself is an accomplishment for a child with Autism, ADHD and Epilepsy. Last month, after his Fall concert was over and the hubby and I were sitting in our seats and packing up our stuff, one of the girls in the choir came over and kissed Dominic on the cheek, it was very sweet. As we were leaving the auditorium, a bunch of his choir “mates,” were telling him what a good job he h...

How many of you have ever seen someone, adult or child, have a grand mal seizure? It is pretty darn horrifying . Yep, that is about the best word I have to describe it. Never in a million years did I ever think Dominic would have Epilepsy. I thought I had a pretty good "handle," on the Autism thing until the grand mal seizure Dominic had in June of 2015. I was hoping and praying that he would just have the one and that would be it.  Little did I know, there would be four more seizures (not grand mal), the most recent at the end of June of 2016. Do I ever fully relax when Dominic is at school, even though they have an emergency plan for him? Nope. Do I let him stay with a babysitter? Nope. I am in constant "high alert," status when he is not with me. It's really, really hard not to be, believe me I've tried. The only thing I knew about Epilepsy prior to Dominic's first seizure was that you have to put the person on their side. I had presence of mi...

Back in late August, I heard of a story involving a child with special needs. It was about an anonymous note that was sent from "one pissed off mother" to a family who has a child with Autism.  The letter was filled with words that were offensive, hurtful and just plain mean.  Parts of it read, "I HATE people like you who believe, just because you have a special needs kid, you are entitled to special treatment!"  Another line, "go live in a trailer in the woods or something with your wild animal kid."  Wow, when I read that, it made me really sad, first of all that a mom could have that much disdain for a child (and his family) and secondly, to take the time to write all that nasty stuff down and then send it?  I find it even more sad to think that this is what the "pissed off mother" is teaching her own children - that it's okay to not have tolerance for others just because they look or act different. Well, I have a news flash f...