I know that you felt uncomfortable in the music school waiting room last Wednesday night. I saw you shifting in your seat, like you would rather have been anywhere else in the world, but where you were. When I started talking to my friend in the wheelchair, I could see you staring at me. When the two young women with special needs starting chatting with each other, I watched you look at them and then turn away. I'm guessing you felt out of place when the three moms of the adult children with special needs started chatting happily amongst themselves at the table next to you. When I was waiting for Dominic's teacher to come and take him back for music therapy, I could tell by your expression that you were trying to guess what his "disability" was. When I saw your son coming down the hallway from his music lesson, I watched you bolt of your chair and rush your son out the door. When Dominic and I were walking to our car and you and your son were getting on your bikes to ride home, I tried to make eye contact with you, but you kept looking down. I really wish you would have looked up, so Dominic and I could have said hi to you. I hope to see you again at the music school. I could tell you that we are not so different, you and I. We are the same. We both have sons that play music.
When Dominic was diagnosed with Autism at 2 1/2, I went to our local library and took out every book I could find about Autism. Sometimes I would bring back 20 books. This was 2006, so a lot of the information was very "dated." I guess I was looking for a book that would tell me what I should do next, like a "manual." Autism doesn't quite work that way! The saying is, " if you know one person with Autism, you know one person with Autism." Every mom to an individual with Autism follows their own "path." I think as moms, we judge ourselves much harder than anyone else does. I was 41 when I had Dominic. Did he get the diagnosis of Autism because I was an older mom? because I drank a lot of pop? I could sit and think about that every minute of every day. I am pretty integrated into the Autism community around Lansing and have told more than one person that it took me about two weeks to come to terms with Dominic's diagnosis. It is so incredib...
Are you sure it was her unfamiliarity with disability that brought on her shyness and not temperament? In a similar situation, I would love to engage someone, but I would be so afraid of offending someone that I would only observe and wait for someone to engage me. I do this because I am a supine, not because I am uncomfortable with people with disabilities.
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