bountifulplate

I was talking to an acquaintance the other day about Dominic.  This gentleman knows that he has Autism.  During the course of our conversation he said, "so, he's a genius, right?" All I said back was, "well, he can play the piano!" Yikes, looking back on that conversation, there were so many things I could have said instead. Like, how about Autism is not the same for every child or adult?  Lately, I feel like I'm in "unchartered territory" with Dominic. Given that he is well past 11 years old, I am almost 100% sure he is going through puberty. So many emotions and hormones are swirling around these days around Dominic that I feel like I am caught up in a tornado! We work all the time on getting him to tell us his feelings. This morning he kept saying, "James got stung on his nose by a bee!" I asked him to show me in the Thomas the Tank Engine book he was looking at where in the story James got stung. Sure enough, there was a p...

Since my parents have gotten older, I have made more frequent trips back to Maryland. In the past five days, I have flown on four planes. Based on my most recent flying "experience," I feel that an airplane "etiquette" post is in order. To the gentleman on my flight from Lansing to Detroit last Friday, I sincerely apologize that I was accidentally in your seat. It was early and I said I was sorry. I could have done without the "dirty" look, though.  Good grief man, it was 5:30 a.m.! On all four of my flights, I was in the aisle seat. That provided me with quite a bit of entertainment. Fellow passengers - please, please, please measure your bags before you leave to come to the airport, especially if you plan on them being your carry-on "item." To the gentleman who pushed his chest into the side of my head while struggling to fit the suitcase into the overhead compartment on the flight from Detroit to Baltimore, I'm so glad you decided to w...

Yesterday afternoon, while I was on hold with a dentist's office, trying to get Lauren an appointment, the call waiting on my home phone beeped in. I didn't answer it because I really needed to finish my conversation with the dentist's office. Well, I guess I should have answered it because it was the social worker at my mom's care facility. After failing to get me on our home phone, the social worker called my cell phone. I picked up the call on my cell phone and the social worker said, "I'm calling about your mom." I said, "I'm on hold with my daughter's dentist's office, is my mom okay? is it an emergency?" She said, "it's not an emergency, but it is urgent ."  Yikes. I had my home phone against my left ear and the cell phone on my right ear. In that moment in time, I literally was in the middle of the generation "sandwich." I was helping both my daughter and my mother at the same exact time!! How many ...

As a new disability ministry in the area, we have a lot to prove. We have to show that what we do is helping others AND is needed.  As program director, I am constantly looking for different programs for our “special” individuals and families. Since April, we have had three special needs Masses, two worship services, a picnic and just recently, a music event at the Michigan State University Community Music School. Our average attendance (not including the picnic) has been holding steady at about 30. The picnic surpassed all expectations and we had about 100 people! One of the gals that brought some wonderful individuals from a group home to the picnic, told me to my face, “there isn’t much out there for older disabled adults to participate in.”   Hmm, I found that quite sad. My son is just 11, but in seven years he will be an adult. The thought of him having very little programs and activities available to him when he reaches 18 is not a thought I like!   That’s wh...

When my husband accepted a job in Michigan in December of 2001, I knew moving away would not be easy for my parents. I've always been very close to them.  It's really, really hard to put into words what it is like to be 600 miles away from my parents, given that my mom is so ill and in a skilled nursing facility. Around last Christmas, the doctors were telling us she had just a few months and to prepare for hospice care.     Well, my mom has defied the odds.  Last night, when I was talking to her on the phone though, she was very confused. It truly breaks my heart, because she is a very smart woman.  Given that she has end-stage congestive heart failure, not enough oxygen is going to her brain. I feel like every time I hang up the phone after chatting with her, I've lost another piece of  the "old" mom. This whole experience of putting my mother into a skilled nursing facility has been difficult for everyone involv...

This past Tuesday was Dominic's first day of sixth grade. The hubby, Lauren and I were all part of the send off "crew." Shortly before his bus came to pick him up, we were explaining to Dominic that when he came back home (he had a half-day), Lauren would need to leave to go back to college. Both Lauren and I saw the tears welling up in his eyes. Even though Dominic has Autism, and a "classic" symptom of Autism is "impaired" social interaction, he is one of those kids that wears his heart on his "sleeve."  You can tell by looking at him how he is feeling.    The "kids" were able to spend an hour or so together and then she had to pack up. Dominic really did not want her to go. He even went over to his daily "schedule" and crossed off, "Lauren go back to college," which I had written earlier in the morning. I said, "Dominic, did you think if you cross it off, that means she would stay here?"...

I try to involve Dominic as much as I can when I am baking. Yesterday morning, we made pumpkin muffins. In the past, when it came time to measure the liquids or crack the eggs, I would do it. I decided that it was time for him to try it.  I showed Dominic where on the measuring cup he needed to fill it to and he did it exactly. Then, since we needed to crack four eggs, I let him do it from beginning to end. He has seen me crack probably enough eggs to circle the Earth, so he applied just the right amount of pressure and dropped all four eggs into a separate bowl,with NO shells!!  I gave him tons of verbal praise and he told me, "I did it the eggs, all by myself!" He was grinning from ear to ear and told me several times throughout the day about his egg cracking.  It may not seem like a gigantic deal to most people, but to me it was another "skill" that Dominic has mastered. Today, we had a "field trip" to the Kroger .  Long gone are the days that I would w...